Peter Parker once said being Spider-Man is both a blessing and a curse and that’s what it’s like to be so regimented in regards to my CF routine.
It’s a blessing being so motivated to do things that improve my health, while at the same time it’s a curse because it’s always on my mind until I complete that last exercise and/or treatment. I did at least two therapies, worked out and did some type of aerobic activity like running every single day in 2019. This included running my 23rd consecutive Peachtree Road Race (under an hour for the very first time), running/walking the stairs at the Rose Bowl, placing second, and improving my overall running pace by nearly two minutes per mile.
Without further ado, here are my approximate 2019 numbers:
Therapy: 990 times
Therapy minutes: 46,500
Pulmozyme: 365 times
Pulmozyme minutes: 4,700
Hypertonic Saline: 990 Times
Hypertonic Saline Minutes: 39,500
Taken 14,000 pills (antibiotics, enzymes, supplements, vitamins, etc.)
Run 800 miles
Executed 65,000 jumping jacks
Jumped 59,000 ropes
Did 365 workouts with bands or weights (never missed a day even for travel)
Trikafta is great and all, but it hasn’t kept me alive. Making exercise and medicine/therapy compliance a priority has, and it will continue to do so for years to come.
Live your dreams and love your life.
Andy