Trikafta- Preparing for a life-changing drug!
Most of you have heard by now that Trikafta has gained FDA approval and will soon become avalible to CF paitents in the US. It’s been a… Read More »Trikafta- Preparing for a life-changing drug!
October 2019
How to Tell People You Have Cystic Fibrosis
When I was little, I didn’t know how to talk about my cystic fibrosis. To be honest, I didn’t even know what CF was. I… Read More »How to Tell People You Have Cystic Fibrosis
5 Keys To success – Staying Fit with CF
Working out has impacted my life greatly and I’m not just referring to my appearance. Getting fit has provided me confidence. It’s a confidence I… Read More »5 Keys To success – Staying Fit with CF
The Wish For Wendy Foundation – Looking To The Future
Wish For Wendy Foundation looking to the future and for a cure for cystic fibrosis. Nearly three years before I was born, my mom gave… Read More »The Wish For Wendy Foundation – Looking To The Future
3 Tips for Traveling with Cystic Fibrosis
Three Tips for Traveling With Your CF Treatment Equipment When you have cystic fibrosis, traveling requires a little advance planning due to the number of… Read More »3 Tips for Traveling with Cystic Fibrosis
Mental Health Awareness
Mental Health Awareness in 2019 Imagine being trapped in a well and the higher you climb, the further away you get from your escape. In… Read More »Mental Health Awareness
How Many Pills Do You Take? – A day of pills as a CF patient.
You may have heard a CF patient or two talk about pills. Pills, Pills, Pills am I right?? So what kind of pills might a… Read More »How Many Pills Do You Take? – A day of pills as a CF patient.
What Does Diet Have to do With Cystic Fibrosis?
Did you know that one of the symptoms of having cystic fibrosis is malnutrition? Yup, you heard it! Individuals with CF (like me) don’t absorb… Read More »What Does Diet Have to do With Cystic Fibrosis?