November 2019

As Thanksgiving approached, I could not help but think of all the things I am thankful for in 2019. I wanted to share this gratitude… Read More »Thankful for 2019

A few minutes ago, I started what I hope to be a new beginning. I started Trikafta, the first CFTR protein modulator that I have… Read More »Starting Trikafta – A Life-Changing Pill

Dear cystic fibrosis, Forty-six plus years ago, you entered my life. I never knew life without you and it’s likely I never will. You have… Read More »Dear Cystic Fibrosis – My open letter to CF

Sitting at home yesterday, the phone rang and I recognized the number. In that moment, I knew I had lived up to the words of… Read More »Life-Changing moment- My Trikafta Approval