With Trikafta, the miracle CF drug, now available to som many individuals with cystic fibrosis in the US. I’ve noticed some distinct commonalities with people who are on the drug. None of these are actual symptoms or side effects of the drug itself according to Vertex’s website. For those of you on Trikafta or know someone who is on Trikafta, do these situations seem familiar?
9 Ways to know someone may be on Trikafta:
- After just five minutes of taking their first two orange tablets, guys are running into phone booths trying to don a red cape and blue tights and women are looking for their gold lassos of truth and an invisible jet (DC Comics humor, folks).
2. CF clinic respiratory therapists are asking these people “What do you mean you can’t get sputum up for me for a culture?”
3. A person who is likely on Trikafta walks into the gym after a few days and in their best Arnold Schwarzenegger impersonation declares “I’m back!”
4. When someone posts on social media that they got a great Christmas or Hanukkah present, it’s likely that it’s not a new puppy or a car. It’s probably a square box with Trikafta on the label.
5. After a week of taking orange and blue pills and checking their scales, a person’s internet search history may for the first time include the terms Weight Watchers and/or Jenny Craig.
6. The individual mentions “The Purge” hundreds of times without knowing of or seeing the movie or TV show with the exact same name.
7. A CF warrior is actually looking forward to taking a PFT (pulmonary function test) rather than being petrified of it.
8. Pictures on their phones are less of their family or pets and more of different angles of the box with Trikafta on the label to see the best picture to use in a social media post.
9. A person has the amazing ability to include the changes in his/her sputum colors and bowel movements in any dinner conversation. A true gift unless you’re on the receiving end of said conversation.
Trikafta is a gift, folks, but so is a sense of humor. I have learned that if you can’t make fun of even the most serious of situations, you’ll never be able to survive this thing called life. Hopefully, you enjoyed this lighter post regarding cystic fibrosis.
Live your dreams and love your life and I just noticed my sputum color and my bowel movements…oh never mind!
Andy
You’re the best!! Thanks!!! I love to read and then pass to my son who started Trikafta today!!! Yeah!!!
hysterical!!! Dylan gets his prescription Dec. 27th…cant wait!!!
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