3 Reasons Why I LOVE Having Cystic Fibrosis!
A lot of people share their disgust for cystic fibrosis on social media. I get it — but I don’t necessarily do it myself. CF… Read More »3 Reasons Why I LOVE Having Cystic Fibrosis!
A lot of people share their disgust for cystic fibrosis on social media. I get it — but I don’t necessarily do it myself. CF… Read More »3 Reasons Why I LOVE Having Cystic Fibrosis!
What does making every breath count mean to you? On September 20 and 21, connect with hundreds of other adults living with cystic fibrosis at… Read More »BreatheCon 2019
CF Warrior Emily Schaller Founder/CEO- Rock CF Foundation gives us inside look into the CF Rock Foundation. Rock CF is a community thousands strong, changing the… Read More »Rock CF – Emily Schaller
My birthday has never been something of a big deal for me. It’s not that I don’t appreciate the fact that I’m getting older despite… Read More »Eclipsing the Life Median – My 46th Birthday
Like most people, I enjoy vacationing at the beach with my family so we can benefit from some sun and waves together. However, unlike… Read More »The CF Salt Life
Life is not about quantity, nor is it about how many years you can live. It’s about how you live the years you are blessed… Read More »Not About the Number of Years
In May I celebrated my 73rdbirthday with a round of golf at Sandpiper Golf Course in Santa Barbara, CA and then dinner at the Boat… Read More »I Want to Age Like Sea Glass – Loretta Morris Memorial Fund
ERROR!!!!!!!!!!!!! From the time I was a toddler to the age of about 15, my parents had to administer postural drainage on me. What is… Read More »What Does Benjamin Franklin Have to do With Cystic Fibrosis?
From the time that Andy was born, Eva and I were concerned, worried, but developed and maintained an optimistic view of Andy’s future. We knew… Read More »A Child Without Limitations
Three moments from my daughter’s first weeks are imprinted on my heart forever. The moment she first opened her eyes. The warmth of her first… Read More »Painting Her in Color