100th day on Trikafta – Celebration and Sadness
The other day I celebrated my 100th day on Trikafta. There were all these things I wanted to say about setting goals I never thought… Read More »100th day on Trikafta – Celebration and Sadness
The other day I celebrated my 100th day on Trikafta. There were all these things I wanted to say about setting goals I never thought… Read More »100th day on Trikafta – Celebration and Sadness
I’ve been very fortunate to have the opportunity of working with hundreds of CF warriors over the years either through the National CF Foundation, The… Read More »10 Qualities I find inspiring about fellow CF warriors
I have been fighting all my life so that someday I would be ready for a drug like Trikafta that could improve my lung function.… Read More »I have been fighting all my life
Losing weight usually is not something a cystic fibrosis patient should be concerned with because we burn more calories than the average person just breathing… Read More »The Trikafta Gain
I began taking Trikafta, the recently FDA approved CF drug, on Sunday, November 24. When I started, I was very nervous about the side effects… Read More »10 tips for Starting Trikafta
Have you ever been in love and you’re on top of the world? You see the world differently. You’re excited. Things could not be better.… Read More »My First of Many Liver Tests -Staying on Trikafta
Cystic Fibrosis is a very rare disease only affecting about 30,000 people in the US and 70,000 people worldwide. Here are seven things you may… Read More »7 Surprising Facts About Cystic Fibrosis
Dear Caregivers, “Death is not the enemy sir, Indifference is! You treat a disease, you win, you lose.You treat a person, I guarantee you, you’ll… Read More »Dear Caregivers
Growing up with Cystic Fibrosis, I always worried about how long I’d have on this earth. Born with a childhood disease, I had a median… Read More »Coping With Guilt and Grief – Life with CF
While my latest clinic appointment was the best I’ve had in about a quarter of a century, my doctor had additional good news about a… Read More »Twice a day! – Life on Tikafta