Being a cystic fibrosis warrior means fighting a disease that up till now has an undefeated record.
It means having hope when “experts” who study our disease every day did not predict we’d still be here.
It means losing friends multiple times a year, friends who you’ve never met in person but still hold a very special place in your heart and knowing that you have the same disease that took their lives.
It means waking up every morning around dawn to do treatments regardless of how you feel and finishing your last one around midnight.
It means taking enzymes with each meal as long as there is at least a gram of fat.
It means traveling with an extra couple of suitcases and looking like the number one on the FBI’s Most Wanted List when you go through airport security.
It means quarterly doctor’s appointments that determine if things are okay “for now” or if you need weeks of IV antibiotics to treat a serious lung infection.
It means feeling different 11 months of the year and having the month of May to make a difference during CF awareness month.
And it means not living to work out but rather working out in order to live.
What does it mean to be a CF warrior? It means having our own undefeated record in the most important game of all: the game of life.
My name is Andy Lipman, I’m a CF warrior & I look forward to putting a blemish on CF’s undefeated record one day & there are lots of people like me out there!
Check out The CF Warrior Project available now on Amazon
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