With Trikafta, the miracle CF drug, now available to som many individuals with cystic fibrosis in the US. I’ve noticed some distinct commonalities with people… Read More »9 Ways to know if someone is on Trikafta
Spreading hope to others with cystic fibrosis is so important to me and why I started the CF Warrior Project. Growing up with cystic fibrosis,… Read More »The Importance of Hope – life with cystic fibrosis
Dear Wendy, Today we would have celebrated your 49th birthday. That’s crazy, right? I wanted to tell you about my year as I do every year… Read More »To Wendy on her 49th birthday.
The FDA approved Trikafta, the CFTR modulator, on Monday, October 21, 2019. Coincidentally I found myself on The Today Show that day discussing what a… Read More »First Month on Trikafta
My name is William. I’m 27 years old and from the Garden State, New Jersey. When I was born, the doctor’s realized something was wrong… Read More »Only 7 Like Me- A CF Warrior Story
On Friday I went ahead and did my pulmonary function test (PFT). I was hoping to get a few percentage points higher and get excited… Read More »You Will Not Believe my PFT Results!
It has been 40 days since the words “Trikafta has been FDA approved.” This is a drug I’ve waited approximately 46 years and 2 months… Read More »My First Week on Trikafta
Giving Tuesday marks the end of all the holiday shopping sales and post-thanksgiving cyber madness! This day offers non-profits and charities alike an opportunity to… Read More »Giving Tuesday 2019 – Curing CF
As Thanksgiving approached, I could not help but think of all the things I am thankful for in 2019. I wanted to share this gratitude… Read More »Thankful for 2019
A few minutes ago, I started what I hope to be a new beginning. I started Trikafta, the first CFTR protein modulator that I have… Read More »Starting Trikafta – A Life-Changing Pill