The Birth of a Movement!
It was October of 2016 and we had just finished our 17th Wish for Wendy softball challenge and while we raised a lot of money for… Read More »The Birth of a Movement!
Blog
CF Awareness Month 2019: Three things that kicked some CF Butt this year.
Today May 2019 will come to and end, which means CF awareness month is nearly complete. It’s been a crazy month looking back and we… Read More »CF Awareness Month 2019: Three things that kicked some CF Butt this year.
7 Extra Steps: Traveling with Cystic Fibrosis
Most people look forward to traveling over the holidays, but when you have a chronic illness, travel involves way more than just jumping on an… Read More »7 Extra Steps: Traveling with Cystic Fibrosis
Remembering CF Warrior, Claire Wineland
Founder of Claire’s Place Foundation At the age of 13, Claire Wineland founded Claire’s Place Foundation, Inc., a 501(c)(3) non-profit organizationproviding support to children and families affected by… Read More »Remembering CF Warrior, Claire Wineland
Being a CF Warrior
Being a cystic fibrosis warrior means fighting a disease that up till now has an undefeated record. It means having hope when “experts” who study… Read More »Being a CF Warrior
Mental Health and Chronic Illness
May is Purple and Green Many of you are aware that this month is Cystic Fibrosis Awareness Month but it’s also Mental Health Awareness Month.… Read More »Mental Health and Chronic Illness
“Hope-Raising” Through the CF Warrior Project
Just 9 more days until “The CF Warrior Project: 65 Stories of Triumph against Cystic Fibrosis” goes on sale! Some have asked “Why is this… Read More »“Hope-Raising” Through the CF Warrior Project
2019: A Special Year for CF Awareness
This is a very special year for CF awareness. Not only is there a New York Times best-selling book (Five Feet Apart) and a blockbuster… Read More »2019: A Special Year for CF Awareness
Someone Special – Dating with CF
Dating with a terminal disease like cystic fibrosis is one of those things that is so difficult to do whether you’re a teenager or an… Read More »Someone Special – Dating with CF
Far From Done
Last week was very exciting. I got the first proof of The CF Warrior Project. I know a lot of people thought that meant the… Read More »Far From Done