Why I’m NOT ready to see Five Feet Apart
I know there is a lot of division in the CF community regarding the latest teen drama “Five Feet Apart.” People with CF are either… Read More »Why I’m NOT ready to see Five Feet Apart
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The Significance of 65 Roses
Most people connected to cystic fibrosis have heard the story about the boy who could not pronounce cystic fibrosis and therefore called it sixty-five roses.… Read More »The Significance of 65 Roses
Q&A with Rachael Lippincot
We had the opportunity to do a Q& A with New York Times bestselling author, Rachael Lippincott. This past week her book Five Feet Apart, hit… Read More »Q&A with Rachael Lippincot
65 Things about Having Cystic Fibrosis That You Won’t Often Find on Wikipedia
65. Having CF means when someone is clubbing, we aren’t partying in Miami. Clubbing means the amount of oxygen in the blood is reduced therefore… Read More »65 Things about Having Cystic Fibrosis That You Won’t Often Find on Wikipedia
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