In May I celebrated my 73rdbirthday with a round of golf at Sandpiper Golf Course in Santa Barbara, CA and then dinner at the Boat House restaurant on Hendry’s Beach. A great start to another year for someone ageing with CF. Yes; I am a CF Warrior who wasn’t diagnosed with CF until I was 64 years old. In spite of years of lung problems I had a successful career and live an active lifestyle. I had a rough month in June ended up needing oxygen to get up the stairs in my house, then in the hospital and on IV antibiotics for two weeks. I am fortunate to live on the Pacific Coast in Ventura, CA and I could still take beach walks even with PICC line in. I am getting my strength back and enjoying my favorite activities: swimming laps, golfing and yoga. I am healthier now in my seventies than I was in my sixties. I was inspired by a poem by Bernadette Noll.
As a CF Warrior I want to age like sea glass, “smoothed by tides, not broken.”
“When I am thrown against the shore and caught between the rocks and a hard place, I want to rest there until I can find the strength to do what is next. Not stuck — just waiting, pondering, feeling what it feels like to pause. And when I am ready, I will catch a wave and let it carry me along to the next place that I am supposed to be.
“I want to age like sea glass. I want to enjoy the journey and let my preciousness be, not in spite of the impacts of life, but because of them.”
I lost my sister Loretta to CF in 1971 when she was just 21 years old. She died just a few months after we had made a trip from San Francisco, CA to British Columbia, Canada. In 2010, I established in her memory, the Loretta Morris Memorial Fund with the Cystic Fibrosis Lifestyle Foundation (CFLF). The
The Fund is supported by 60 friends and family members and has awarded 170 grants since 2010. The total funds disbursed for the grants equal $71,800. A few grant recipients are featured here.
Additional information about CFLF and the Loretta Morris Memorial Fund is available at www.CFLF.org
By: Barbara M. Harison