In May I celebrated my 73rdbirthday with a round of golf at Sandpiper Golf Course in Santa Barbara, CA and then dinner at the Boat House restaurant on Hendry’s Beach. A great start to another year for someone ageing with CF. Yes; I am a CF Warrior who wasn’t diagnosed with CF until I was 64 years old. In spite of years of lung problems I had a successful career and live an active lifestyle. I had a rough month in June ended up needing oxygen to get up the stairs in my house, then in the hospital and on IV antibiotics for two weeks. I am fortunate to live on the Pacific Coast in Ventura, CA and I could still take beach walks even with PICC line in. I am getting my strength back and enjoying my favorite activities: swimming laps, golfing and yoga. I am healthier now in my seventies than I was in my sixties. I was inspired by a poem by Bernadette Noll.
As a CF Warrior I want to age like sea glass, “smoothed by tides, not broken.”
“When I am thrown against the shore and caught between the rocks and a hard place, I want to rest there until I can find the strength to do what is next. Not stuck — just waiting, pondering, feeling what it feels like to pause. And when I am ready, I will catch a wave and let it carry me along to the next place that I am supposed to be.
“I want to age like sea glass. I want to enjoy the journey and let my preciousness be, not in spite of the impacts of life, but because of them.”
I lost my sister Loretta to CF in 1971 when she was just 21 years old. She died just a few months after we had made a trip from San Francisco, CA to British Columbia, Canada. In 2010, I established in her memory, the Loretta Morris Memorial Fund with the Cystic Fibrosis Lifestyle Foundation (CFLF). The
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The Fund is supported by 60 friends and family members and has awarded 170 grants since 2010. The total funds disbursed for the grants equal $71,800. A few grant recipients are featured here.
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Mary – Age 7 – California – Swimming “I will take swimming lessons and learn how to take deep breaths and hope that will make my lungs stronger and I will be healthier.”
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“Dance gives me something to do that helps me keep moving. Exercise is a very important thing to do when you have CF. Dance is so much fun I don’t think of it as exercise but as an enjoyable activity.”
Additional information about CFLF and the Loretta Morris Memorial Fund is available at www.CFLF.org
By: Barbara M. Harison