The CF Warrior Project: 65 Stories of Triumph Against Cystic Fibrosis was so well received that we have decided to create another one. For this book, I will be not only saluting warriors with cystic fibrosis who persevere and live life to the fullest every day, but also people who fight right alongside us every day. From caregivers and leaders at CF organizations to scientists and company executives, it takes a village and we have a mighty one! We would love to hear your stories or for you to nominate someone from “your village” to be in the second installment of The CF Warrior Project.
Submit Your Story or Nomination
Thank you for taking the time to read through and answer these questions as thoroughly as possible. I understand that not everyone can answer every single question, but please answer as many as you can that pertain to you. If you have already answered these questions previously, we will be in touch to let you know about any potential next steps. Thank you for taking part.
Live your dreams, love your life,
Andy Lipman
I would like to nominate my wife Megan Barker. She is not only my CF care taker but also a Resgistered Respiratory Therapist. And she also launched her non profit Project CF spouse a few years ago.
I would like to nominate Terry Wright for inclusion in the second CF Warrior Project book and encourage others to do so as well. Terry is a prominent advocate for African Americans living with CF, and has a very unique personal biography that includes a complex and difficult journey to getting a diagnosis because of the widespread perception that Black people cannot have CF.
I nominate Terry Wright the second CF Warrior Project book. Terry is an African American with CF and received a very late diagnosis due to the widespread belief that Black people cannot have CF. Terry is a founder of the National Organization of African Americans with Cystic Fibrosis (NOAACF) and is working on a children’s book for minorities with CF.
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