On Friday I went ahead and did my pulmonary function test (PFT). I was hoping to get a few percentage points higher and get excited about the weekend. But unfortunately with pulmonary function tests, you never know how they are going to go. As most of you know this is a big deal as I have been taking Trikafta for a few weeks now. To say I was nervous is an understatement!
When doing a PFT, the big number to look at is FEV1 which is the Forced Expiratory Volume in the first second (how much you blow out in the first second). It’s the volume of air that can be forced out in one second after taking a deep breath, an important measure of pulmonary function.
The second most important part of the PFT at least most times is forced vital capacity (FVC). This is a measurement of lung size (in liters) and represents the volume of air in the lungs that can be exhaled following a deep inhalation. Obviously, I was hoping for an improvement in all of the above and had high hopes since I started taking Trikafta.
Here are my results:
10-3-19 Pre-Trikafta
FVC 4.7 Liters
FVC% 95%
FEV1 3.3 Liters
FEV1% 84%
Today – 13 days since starting Trikafta
FVC 5.9 Liters
FVC% 118%
FEV1 3.5 Liters
FEV1% 89%
Best numbers in years!!!! So excited! I haven’t had this big of an increase in a long time. I’m beyond words!
Live your dreams and love your life!!!
Andy
So so happy for you and your family and friends!! Praying my son-in-law to be gets approved for this medicine very soon!
Andy, I am so happy for you!!! Awesome!!!
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